Sperm-donor siblings unite online - Associated Press

NEDERLAND, Colo. - Michelle Jorgenson thought it was odd that her 8-year-old daughter Cheyenne ? conceived with sperm from a mystery man known to Jorgenson only as Donor 3066 ? was extremely sensitive to sound and walked on her toes.

Jorgenson started checking on the Internet and soon learned of at least six other children around the country who were fathered by 3066. And of those seven, she discovered to her alarm, two have autism, and two others, Cheyenne included, show signs of a sensory disorder tied closely to autism.

The children's mothers located one another beginning a year ago through the Donor Sibling Registry, a Web site run out of this Colorado mountain town. It enables mothers artificially inseminated by the same donor ? and children fathered by the same man ? to find each other.

In this case, the women all used 3066, whose sperm was provided by the California Cryobank, based in Los Angeles.

"Pretty much you're thinking this person has a perfect medical history," said Jorgenson, who lives in Sacramento, Calif. "And then later I find out that some of the other siblings have other disabilities that are or are not attributed to the donor. I wouldn't have chose him had I known this had existed."

The Web site that brought them together is run out of Wendy Kramer's home in Nederland. Kramer started the registry so her son Ryan could find his siblings, and she said it has led to family reunions and brought joy to people who send out e-mail inquiries that typically begin, "Hi, you don't know me, but we're related."

Seeking answers and support But the site has also become a clearinghouse for those seeking answers about everything from potentially dangerous medical conditions to personality quirks. Often, they come away with more questions than answers because most sperm banks and clinics refuse to share confidential files about donors.

"There are people on our Web site seeking siblings because their kids have medical issues, for sure, and even in a medical emergency the sperm banks won't facilitate any contact, which is kind of frustrating," Kramer said.

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So far, the mothers who were impregnated with 3066's sperm have been frustrated in their attempts to find out more about the man and confirm their suspicions that their children inherited their medical problems from him.

But they have formed a support group of sorts, comparing notes on their youngsters and arming themselves with medical information they might need someday.

Researchers do not know whether autism, a disorder that affects the ability to form normal social relationships and communicate with others, is a hereditary disease or an acquired illness, according to the Autism Society of America. It affects one in 175 children ages 4 through 17, the society said.

The Web site helped Jorgenson find Jenafer Elin, whose 9-year-old son Joshua, another offspring of 3066, is also sensitive to noise and hates wearing clothing with tags. Cheyenne, Joshua and their 7-year-old half-sister Allyson and their mothers met in Fresno, Calif., this summer for a reunion.

"They got along well and they hit it off immediately," said Allyson's mother, Dawn Warthen of Taneytown, Md. "They referred to each other as brother and sister. They all looked very similar with their blond hair and the girls both had shocking blue eyes."

Donor 3066 ? a man of Norwegian and German descent and a member of the Screen Actors Guild ? filled out a medical profile and reported only that his paternal grandmother had high blood pressure, Jorgenson said.

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Embryos Made to Order? Or, News Article Attempting to Prohibit One's Right to Have a Baby? What Do You Think?

By Debra J. Saunders - Town Hall, Washington, DCJennalee Ryan of Texas advertises "The World's First Human Embryo Bank" online. There's no need for would-be parents to settle for already-born babies or leftover embryos from couples with fertility issues. Ryan sent out a letter that explains, "Recipient parents will receive pictures of the donors as infants, and sometimes as adults; full medical background and health reports, and a family history." Her group, The Abraham Center of Life, uses sperm donors only with college degrees -- although "most of them have doctorate degrees" -- while most egg donors have some college.O Brave New World that has such Petri dishes in it. Prospective parents can pick the sperm and the eggs to produce their designer babies. Ryan even says she can find a surrogate mother to carry the fetus to term.Ryan would not give me the names of any clinic or any doctor with whom she works -- so I could not verify that she can deliver on her claims. Buyer beware. But her announcement has bioethicists in a lather. In response to a British story on Ryan's work, the Weblog for the American Journal of Bioethics wrote, "Welcome back to the Wild, Wild West of Assisted Reproduction."Art Caplan, director of the Center for Bioethics at the University of Pennsylvania, noted that even if Ryan is operating out of her own freezer, even if she is -- excuse the pun -- a "mom-and-pop entrepreneur, there will be bigger fish swimming in pretty soon." Why? "The demand is there. The behavior of people selling sperm and eggs is wild enough; there's no reason to think this isn't the natural next step in making babies: embryos to order."Aren't you selling designer babies? I ask Ryan over the phone last week."Designer babies? Yeah. Why not?" she replies with a laugh. For years, she adds, sperm banks have required college degrees from donors, and she often uses a sperm bank that requires sperm from Ph.D.s. "Does that make it a designer baby because they have a Ph.D.? But why wouldn't I use someone with a Ph.D. versus a truck driver? It's all the same cost.""You know why I did it? Because I could." Ryan explains. She started Abigails Silver Spoons Adoptions, Inc. years ago, and while that enterprise continues, Ryan saw a new market in embryos.If a couple tries to adopt a baby, but the birth mother changes her mind, that couple can be out $10,000 -- with no baby to show for it. If a couple wants to adopt a frozen embryo, the couple usually is screened by the embryo's parents (if you will) -- and with frozen embryos the success rate is around 30 percent.Ryan says that with proven egg and sperm donors, "medical experts predict that the pregnancy rate is closer to 70 percent." I'll ask the American Society for Reproductive Medicine about that, I tell her. Ryan says they'll confirm her number, but ASRM Sean Tipton spokesman flatly refuses to do so.He wonders if Ryan is a third-party broker, because she is not a member of his medical group. No, she says, she is "a business."It also turns out that the embryo bank is not really a bank. "When we say an embryo bank, it's not like a closet," Ryan explains. "We have embryos at different clinics." How many? Again, Ryan would not supply their names, but she says she has 32 embryos and "they're all spoken for." When she has another backlog and knows what her clients want, she'll cook up a new batch.Caplan can't stand the language used in the embryo biz. Don't call them egg donors and sperm donors, he says. Call them "egg sellers and sperm sellers." (In case you're wondering, Ryan's site lists the egg donor's fee as $3,500 to $15,000, although, "exceptional and repeat donors will often receive higher compensation.")As for Ryan's statement that, "Egg donation is a safe, simple procedure that requires little more than several scheduled doctor appointments and the administration of fertility medication, " Caplan disagrees. "That's too kindly a description," he says, citing women who have died using fertility drugs.Caplan believes that the United States should be regulating the embryo trade. He asks: "Who the hell are they and how do we know that these numbers are true?"William Hurlbut of Stanford University, a member of the president's Council on Bioethics, a White House advisory council, looked at Ryan's Web site and noted that the practices she advertises are happening, although, "This would be one of those realms where it would be pretty hard to detect fraud."Caplan asks, "How do we get to the point where you go to jail if you go up to someone on the street and say, 'Do you want to buy my child for $10,000?' You'd think they were barbaric, immoral, heinous people. But if they come down the street and say, 'Hey, there's an Internet site. Do you want to buy an egg, sperm and surrogate mother?' We think they're just entrepreneurs. What's going on here?"I wonder: If would-be parents choose sperm and eggs to design an ideal child, what's next? Will there be a world led by designer babies and serviced by us undesigned folk?Ryan tells me, "As of right now, there is no regulation. You know how it works? If there is no law against it, it's legal."